For those of you interested in the psychological evaluation, the rest of this post is dedicated to the appointment, and I am writing it so you have some sort of idea what you are in for. I certainly would have loved to have had some insight to this process beforehand. I jotted down the names of the tests while at the office so I could leave them in this post for you. Hopefully this helps anyone who may have to undergo this same scrutiny.
The psychologist's office was supposed to send paperwork for me to complete before my appointment, but they rushed me in due to a cancellation, so the papers hadn't even arrived in the mail. It wasn't a big deal, it just made the appointment even longer. I was in the office filling out questionnaires and completing multiple choice and true/false tests for roughly four hours, then I had an hour-long appointment with the doctor. By the end, not only was my back/flank on fire, my hands and wrists were hurting me so much I had to go sit in my car with ice packs on them for a half-hour before I was able to drive away. While I understand that psychological factors play a big part in patient care, and especially treatment for chronic pain patients, I was appalled at the length in which I had to prove my pain to a doctor who had never even met me. I was frustrated that I was being asked asinine questions like, "Do you enjoy science?," "Would you like to be an artist?," and "Was there ever a time when you were a child that you were considered a trouble-maker?"
I found myself over-thinking every question during the appointment. There were multiple questions asking if I enjoy crime shows. If I answered "yes" to these questions, would it make me seem like I was interested in crime, murder, violence? I love the show Law & Order: SVU, but, what would it mean for my horrific flank pain if I said I enjoy watching it? I also had to answer a question about being gay, like that has anything to do with my flank pain. Hours and hours of questions, mostly personality tests. I was hurting so badly, I was having a hard enough time focusing, let alone filling in the bubbles on the scantron sheets. I barely finished, really had to push myself to complete all of the tests. There must have been over 2,000 questions, and that isn't an exaggeration. Information regarding the two largest tests is below.
LAQ-2: The Life Assessment Questionnaire (click here to view entire test):
According to HealthNetSolutions, "The LAQ-2 is a well-validated instrument for determining the likelihood of deception and malingering in the chronic pain population. The majority of the LAQ-2 requires patients to indicate if they are experiencing various physical and psychological symptoms. They are queried about symptom complaints across all major bodily systems. Patients are also asked questions measuring a variety of beliefs such as perceived suffering, cynicism, and general health."
Deception and malingering? Basically, this test is to decipher whether or not you are lying about your pain.
The Minnesota Multiphasic Personality Inventory, Version 2 (MMPI-2):
According to Wikipedia, the "MMPI is one of the most frequently used personality tests in mental health. The test is used by trained professionals to assist in identifying personality structure and psychopathology." Topics: concern with bodily symptoms, depressive symptoms, awareness of problems and vulnerabilities, conflict, struggle, anger, respect for society's rules, stereotypical masculine or feminine interests/behaviors, level of trust, suspiciousness, sensitivity, worry, anxiety, tension, doubts, obsessiveness, odd thinking and social alienation, level of excitability, people orientation. A lot of the questions on here were meant to figure out textbook cases of depression, bipolar disorder, schizophrenia, etc. I was concerned if having bipolar disorder and PTSD would ruin my chances of trying the stimulator.
TRUE OR FALSE
- I like mechanics magazines
- I have a good appetite
- I wake up fresh & rested most mornings
- I think I would like the work of a librarian
- I am easily awakened by noise
- I like to read newspaper articles on crime
- My hands and feet are usually warm enough
- My daily life is full of things that keep me interested
- I am about as able to work as I ever was
- There seems to be a lump in my throat much of the time
- A person should try to understand his dreams and be guided by or take warning from them
- I enjoy detective or mystery stories
- I work under a great deal of tension
- I have diarrhea once a month or more
- Once in a while I think of things too bad to talk about
- I am sure I get a raw deal from life
- My father was a good man
- I am very seldom troubled by constipation
- When I take a new job, I like to be tipped off on whom should be gotten next to (this question isn't correct, but it was something about getting info on who to be buddy-buddy with at your new job)
- My sex life is satisfactory
- At times I have very much wanted to leave home
- At times I have fits of laughing & crying that I cannot control
- I am troubled by attacks of nausea and vomiting
- No one seems to understand me
- I would like to be a singer
- I feel that it is certainly best to keep my mouth shut when I’m in trouble
- Evil spirits possess me at times
- When someone does me a wrong I feel I should pay him back if I can, just for the principle of the thing
- I am bothered by acid stomach several times a week
- At times I feel like swearing
- I have nightmares every few nights
- I find it hard to keep my mind on a task or job
- I have had very peculiar and strange experiences
- I have a cough most of the time
- If people had not had it in for me I would have been much more successful
- I seldom worry about my health
- I have never been in trouble because of my sex behavior
- During one period when I was a youngster I engaged in petty thievery
- At times I feel like smashing things
- Most any time I would rather sit and daydream than to do anything else
- I have had periods of days, weeks, or months when I couldn’t take care of things because I couldn’t “get going”
- My family does not like the work I have chosen (or the work I intend to choose for my life work)
- My sleep is fitful and disturbed
- Much of the time my head seems to hurt all over
- I do not always tell the truth
- My judgment is better than it ever was
- Once a week or oftener I feel suddenly hot all over without apparent cause
- When I am with people I am bothered by hearing very queer things
- It would be better if almost all laws were thrown away
- My soul sometimes leaves my body
- I am in just as good physical health as most of my friends
- I prefer to pass by school friends, or people I know but have not seen for a long time, unless they speak to me first
- A minister can cure disease by praying and putting his hand on your head
- I am liked by most people who know me
- I am almost never bothered by pains over the heart or in my chest
- As a youngster I was suspended from school one or more times for cutting up
- I am a good mixer
- Everything is turning out just like the prophets of the Bible said it would
- I have often had to take orders from someone who did not know as much as I did
- I do not read every editorial in the newspaper everyday
- I have not lived the right kind of life
- Parts of my body often have feeling like burning, tingling, crawling, or like “going to sleep”
- I have had no difficulty in starting or holding my bowel movement
- I sometimes keep on at a thing until others lose their patience with me
- I loved my father
- I see things or animals or people around me that others do not see
- I wish I could be as happy as others seem to be
- I hardly ever feel pain in the back of the neck
- I am very strongly attracted to members of my own sex
- I used to like drop-the-handkerchief
- I think a great many people exaggerate their misfortunes in order to gain the sympathy and help of others
- I am troubled by discomfort in the pit of my stomach every few days or oftener
- I am an important person
- I have often wished I were a girl. (Or if you are a girl) I have never been sorry that I am a girl
- I get angry sometimes
Hope that helps! I'm in awful pain tonight, but keeping my spirits up for the big day tomorrow. I am off to get some sleep. :) Love and strength to all of you!
xo
dani

4 comments:
Sorry You were in awful pain as you wrote this... thanks for all the details... I mean we all have a LOT of time on our hands, to watch tv and sit in bed in pain, so I gotta admit that we ALL like crime dramas to bored moments of pain in which we need distraction. Your as normal as they come with the EDS DNA... SCARY!
I really don't get what anyone's sexuality or gender issues have to do with chronic pain. And some of those questions about stomach pain and vomiting etcetera are not going to take into account we have a weird, complicated genetic condition that affects those things and more. That sounds like a very demanding experience, both physically and emotionally!
I'm glad that you are moving on to the next step with this, and hope that it helps your pain and is going to be worth all this nonsense in the end! *fingers crossed extra bendy style*
Also, I second Christa's thank you for typing this up while in pain. Thank you!
Hi to all of you, I've never replied before but have read many of your posts. I too have EDS, I was diagnosed in 2008 after an accident in 2005. I had my first SCS implanted last summer and it works great. They are hoping too implant another one in a few months. Hope all goes well and it works as well for you as it does for me. Thank you for all of your SSD advice as I recently got approved as well.
Informative and interesting. Thanks for sharing very informative and unique post. Keep posting and do stay in touch.
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